Resources
Here are resources that we have found along the way in our journey with Baby Angelica that we hope might help you as well. Please feel free to message us with additional resources for families that are affected with this disease.
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Here is the official facebook group for sturge weber awareness.
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Here is a link to the Sturge-Weber Foundation. They also have a Facebook group. Here is an additional group to join on Sturge-Weber Awareness.
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Milwaukee Regional Medical Center Children’s Wisconsin. A great starting point.
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Here is a link the to SWA Facebook Group.
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Information on Sturge-Weber through the National Institute of Neurological Institute of Disorders and Stroke.
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Here are some additional resources that we found in the National Library of Medicine.
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If you’re looking for for hospital care that specializes in Sturge-Weber here is a link for you.
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Here is a link from UCLA about the disease - Sturge-Weber.
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Facebook group for the Hemispherectomy Foundation.
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Here is a link for a Facebook group for Parents of Children with Epilepsy Support Group.